Girl with 'suicide disease' shares heartbreak as she faces race against time
A family of a young woman diagnosed with "suicide disease" have shared their heartbreak as they desperately try to save her from the "intense suffering."
Amelia Martin, from Canterbury, Kent, was 17-years-old when her life turned upside down with the "cruel" condition, which is known as Complex Regional Pain Syndrome (CRPS).
The disease, which first showed its signs on Amelia in September 2017, can cause a person to experience such severe pain that it can make sufferers consider ending their lives.
Amelia would randomly notice the sensation of pins and needles as well as the feeling of her skin burning.
And then one day after school the condition became increasingly worse.
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“She kept saying her toes are burning. She wouldn’t let me touch her. She said she felt like she was going to die,” her mum Natalie Martin told The Independent.
Amelia noticed the symptoms in September 2017 (Go Fund Me)Things went from bad to worse by the morning when her body started to give up on her.
The teen, who said she felt like she was being burned alive, lost the use of her limbs as well as sensory feelings such as taste and touch.
After weeks in deliberating pain, Amelia was diagnosed with CRPS and a nerve disorder called as small fibre neuropathy. The disorder can also act as an allergy which causes her skin to peel when it meets water
Amelia suffers from a range of symptoms (Go Fund Me)Amelia's condition has become so severe that she has tragically lost her ability to walk due to the weakness in her limbs.
The slightest touch or switch in temperature can trigger "relentless" pain.
Speaking about her daughter, Natalie said: “She looks at four walls, she doesn’t leave the house unless we take her to appointments. It’s a lonely existence for her and for us."
Amelia was enjoying her teenage life before being struck by the condition (Go Fund Me)Amelia's family say they've “exhausted” their options in the UK and have launched a GoFundMe in a bid to access treatment in Arkansas, US.
Natalie explained The Spero Clinic is the only place to offer treatment which can reduce pain levels to two or three. Amelia currently suffers from daily pain levels of eight and nine.
“If we don’t do something, I know I’m not going to have my daughter next year," her mum added.
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Bruising from the condition (Go Fund Me)"This is our only hope, this is all we’ve got.”
Her mum wrote on the fundraising page: "[ Millie's ] story is heartbreaking and for the last five and a half years we’ve watched her endure the relentless pain and intense suffering of a cruel neurological condition.
"The uncertainty is agonising but her strength, resilience and bravery give me the strength in continuing to fight with every part of me to make sure Millie gets her life back. The life that she deserves and so desperately wants."
The fundraiser can be found here.
If you are struggling and need to talk, the Samaritans operate a free helpline open 24/7 on 116 123. Alternatively you can email [email protected] or visit their site to find your local branch.
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