Girl, 11, battling rare feet-swelling disease given hope with new 'miracle' drug
A little girl whose feet are so big she needs to use a wheelchair hopes a new 'miracle' drug can help her walk again.
Brave Angel suffers with Cloves syndrome, a disease which causes the overgrowth of tissue.
The 11-year-old's feet are swollen to the size of watermelons and are so heavy that she has to rely on support to get around.
Moira Kelly from the Creating Hope Foundation has become the Pakistan-born girl's guardian while she has been in Australia - and she could have helped change her life.
Giving her access to a trial drug that has has "remarkable" preliminary results, the tiny pink pill costs around $100,000 (£52,000).
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Angel says she "just to be normal like other kids" (9 News)But after hearing the child's story, it will be provided for free on compassionate grounds.
Her paediatrician Dr Luke Sammartino told A Current Affair that the girl has hope for the future.
He says he was "just gobsmacked, just blown away" by the potentially huge news.
“We’re really, really hoping as a team that this drug will shrink her feet down and give her back the ability to walk,” he said.
The brave young girl fighting an incredibly rare disease (9 News)Angel was due to have both feet amputated in 2019.
But medics at Melbourne's Royal Children’s Hospital deemed the operation too risky.
A possible solution has now been found and the excited youngster is now dreaming of walking again.
“We’ve taken a lot of pathways to get where we are now,” Ms Kelly said.
She has been seen by more than 100 doctors in three countries (9 News)"They just said we've had a meeting and we just feel that we won't be able to operate on Angel now.
"They said the best thing for Angel is to go back to her family, around those who love her and go to palliative care."
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According to 9now, Angel's internal organs are being crushed and that forced her to full hysterectomy last year.
"I want to be able to walk and do other things without pain and struggle," Angel told the outlet.
"All I really want now is to get better and just to be normal like other kids."
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